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Nursing Science Quarterly
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Giving Voice to Persons Living With Dementia: The Researcher’s Opportunities and Challenges

Theresa F. Moore, RN; MScN

Sunnybrook & Women’s College Health Sciences Centre

Jane Hollett, RN; MSc

Client-Centered Care

Few qualitative studies have examined the experiences of persons living with dementia and little has been written about the opportunities and challenges for the researchers. This article challenges the assumption of dwindling personhood among persons with dementia. Methodological challenges which may be encountered by qualitative researchers are outlined and specific strategies for addressing these challenges are described including: modifying consent/assent procedures, adjusting sample size, facilitating communication, and making the most of the data.

Key Words: dementia • human becoming • personhood • qualitative research

Nursing Science Quarterly, Vol. 16, No. 2, 163-167 (2003)
DOI: 10.1177/0894318403251793251793
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